The Journey Begins

Well, I’m finally doing this…starting a blog that helps me share my adventures, experiences and challenges! I hope that through my attempt to live a fun and full life, even faced with the massive obstacle of Pulmonary Fibrosis, will help some of you feel strong enough to do the same. I’m not saying each day is easy, but each day is precious and should be celebrated, even if it means staying home on your oxygen compressor, which in my house, we so lovingly refer to as “R2D2”, and taking a hot bath or reading a good book in the backyard.

So, what’s my story? I was diagnosed with Idiopathic Hypersensitivity Pneumonitis in 2013. I had never been ill prior to my lung disease and I was a thriving 27 year old woman. I had a good job, a cute condo, a wonderful husband, and we were living a great life. Needless to say, it hit me like a ton of bricks.

So now what? I’m at 20% lung capacity and I’m working towards qualifying for a lung transplant and I’m trying to live fully each and every day. I don’t know what the future holds but I do know that each new day is an opportunity to check something off the bucket list or enjoy time with family and friends. I had a habit of saying, “Once I get my lungs…”  but now I try to say each day is life and part of the adventure. More to come on my Pulmonary Fibrosis journey and more to come on my day to day of living a full life even with diseased lungs!

Life is a journey, not a destination. 

~ Ralph Waldo Emerson

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4 thoughts on “The Journey Begins

  1. Thank you for sharing your journey and the positive, can-do, optimistic attitude and mind set. You are an inspiration!
    Can’t wait to read more…….

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    1. Kelly, what a gal!

      While I hate the fact that you have pulmonary fibrosis, I love the way you describe how you’re dealing with it, and am sure that you will be a BIG help to anyone else out there with the same problem. You are a CHAMP!

      Am so happy that you are sharing your story, as I’m reluctant to ask your Mom about you because it is such a sensitive subject. You are in my thoughts and prayers (although I don’t think He’s listening me).

      A billion hugs,

      Dottie

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  2. Kelly! You were always my moms favorite dancer!! She loved watching your beautiful smiling face! She has been Suffering with arthritis’s in her legs making it difficultict for her to walk at times and gets depressed!!! Reading your blog brought tears to her eyes! You were such an inspiration to her!! Made her realize she’s had a good life and still has so much to be thankful for ! She will remember you when she starts to get depressed! Even on her bad days she still has her family and a lot to be thankful for!! She also has macular degeneration which makes it hard for her to see ! So I’m writing this for her! Thank you for you beautiful blog GodBless you! You have been an inspiration to me also! Love and miss you! In my prayers always moms too !😇🙏😘

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